HISTORY - In January
1997, my mother Lillian died at the age of 66 years of age from Lung Cancer and Emphysema. During her five-year battle with Lung Cancer she met with numerous health care specialist, had a multitude of procedures and all sorts of treatments. At the same time, my father was diagnosed with Cancer. It was a challenging time for my parents and our family. Coordinating care, meeting with all the different doctors, clinic staff, understanding all the different treatment options, managing the plethora of medications, organizing insurance papers, and dealing with the emotional roller coaster ride we were all on - was exhausting.
Like many families, my parents were overwhelmed with all the daunting decisions they faced and realized early on they needed to coordinate care and manage important medical information for easy access and accurate record keeping.
Having worked in healthcare for more than 20 years designing services and programs for people dealing with aging related issues and life altering conditions, I understand first-hand how having critical health care information can mean the difference between life and death. I also understand how overwhelming it can feel in a crisis when one is not able to share vital information that impact the outcome or care.
In an effort to help my parents manage all the different medical treatments, track an accurate health history with up-to-date changes, manage medication, and provide a vehicle for them to express the unmentionable, I created a journal for my mother that later evolved into the
Personal Health Care Passport. My mother has since died, but her journal and words inspired me to create a template to enhance quality of care for others facing the health care journey and making difficult decisions as they age. I am pleased to share that my 86 year old father uses his PHCH each time he visits his doctors and pharmacist.